| | SLO | ENG | Cookies and privacy

Bigger font | Smaller font
First page > Show document

Show document Help

Title:Varstvo osebnih podatkov kot temeljna človekova in pacientova pravica : magistrsko delo
Authors:ID Turnšek, Ema (Author)
ID Kraljić, Suzana (Mentor) More about this mentor... New window
Files:.pdf MAG_Turnsek_Ema_2024.pdf (5,53 MB)
MD5: E78A21CC89F4D73466655D4919995461
 
Language:Slovenian
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:PF - Faculty of Law
Abstract:Magistrsko delo obravnava vprašanja in dileme varstva osebnih podatkov zdravstvene narave in jih locira v pravnem sistemu. V glavnem se ukvarja z vrsto občutljivih osebnih podatkov zdravstvene narave. Občutljivi so zato, ker se nanašajo na lastnosti ali kvalitete človeka, zaradi katerih bi lahko bil podvržen diskriminaciji in/ali stigmatizaciji (npr. diagnoza psihološke bolezni, prizadetost, neplodnost, okuženost z virusom HIV ipd.). Slovenija je šesta država v Evropi, ki je v splošnem zavarovala pravico do varstva osebnih podatkov z Ustavo Republike Slovenije. Varstvo osebnih podatkov v zdravstvenih sistemih Slovenije pa se od takrat razvija na različne načine. V Urgentnem kliničnem centru v Ljubljani so že okoli leta 2000 izdelali Izjavo o posredovanju informacij o osebnih podatkih in o zdravstvenem stanju, ki je urejala in legitimirala posredovanje informacij pacienta. Nekoliko kasneje, leta 2008, se je začelo načrtovanje projekta eZdravje. Kljub temu, da se je njegovo izvajanje dodobra začelo šele leta 2015, je do konca krize Covid-19 projekt doživel razcvet. Prinesel je ogromno novosti, ki so se izkazale za ene bolj in druge malo manj dobre. Pojav epidemije Covid-19 je prispeval tudi naklonjenosti vlade k izdajanju številnih predpisov in odlokov, kar je rezultiralo v precejšnjem razburjenju množice, ustavnih pritožbah, zahtevah po presoji ustavnosti kot tudi v dejanskih kršitvah človekovih in pacientovih pravic. S tem se zaključi historični pregled ureditve varstva osebnih podatkov v Sloveniji in se začne podrobna opredelitev danes veljavne pravne ureditve v zvezi s pravico do varstva osebnih podatkov, ki velja v našem nacionalnem pravnem redu. Pravica do varstva osebnih podatkov pacienta ni varovana zgolj na nacionalnem nivoju, temveč tudi skozi določbe primarnega in sekundarnega prava EU ter EKČP. Magistrsko delo zajema obravnavo vseh relevantnih pravnih aktov, ki kakorkoli vplivajo na uresničevanje pacientove pravice do varstva (zdravstvenih) osebnih podatkov. Temelji varstva splošne pravice do osebnih podatkov so zastavljeni v določbah najvišjih aktov, t. j. v ustavi, primarnem pravu EU in EKČP. Poleg slednjih, magistrsko delo predstavlja tudi splošnejše pravne akte, ki urejajo pravila za zakonito uresničevanje navedene pravice, to sta Splošna uredba o varstvu podatkov kot del sekundarnega prava EU in Zakon o varstvu osebnih podatkov kot lex generalis za zadevno področje. Ker se delo osredotoča na obravnavo varstva osebnih podatkov v zdravstvenih sistemih oziroma na specifično zdravstvene osebne podatke, sega raziskava tudi do specialnih zakonov na področju zdravstva, saj le-ti predvidevajo spoštovanje pravice do varstva (zdravstvenih) osebnih podatkov v konkretnem. Varstvo osebnih podatkov zajema več pravic, denimo pravico do dostopa, pravico do omejitve obdelave, pravico do izbrisa ali pozabe, in med drugimi tudi pravico do seznanitve z osebnimi podatki. Slednja lahko na nek način asociira na pojasnilno dolžnost zdravnika. Oba fenomena namreč pokrivata pacientovo pravico do seznanitve, vprašanje je le do česa, kdaj in v kakšnem obsegu. Iz tega razloga je v magistrsko delo vključena primerjava, ki izpostavi njune razlike in določene skupne točke. Glede na to, da se večji del magistrskega dela osredotoča na pravo, veljavno v Sloveniji in deloma za EU, je na koncu vključena primerjava koncepcije varstva osebnih podatkov v dveh zelo različnih pravnih sistemih – ZDA in EU. S tem se magistrsko delo nekako zaokroži in uspešno prikaže celostno sliko varstva osebnih podatkov v smislu temeljne človekove in pacientove pravice.
Keywords:osebni podatki, občutljivi osebni podatki, zdravstveni osebni podatki, pravica do zasebnosti, varstvo človekovih pravic, zdravstvena dokumentacija, pojasnilna dolžnost, varstvo osebnih podatkov, medicinsko pravo, kršitve pravice do varstva osebnih podatkov
Place of publishing:Maribor
Place of performance:Maribor
Publisher:E. Turnšek
Year of publishing:2024
Number of pages:1 spletni vir (1 datoteka PDF (VI, 67 str.))
PID:20.500.12556/DKUM-89430-25e71ae0-aa86-be18-1026-de1ba705bb4a New window
UDC:342.7(043.3)
COBISS.SI-ID:206253827 New window
Publication date in DKUM:04.09.2024
Views:89
Downloads:138
Metadata:XML DC-XML DC-RDF
Categories:PF
:
TURNŠEK, Ema, 2024, Varstvo osebnih podatkov kot temeljna človekova in pacientova pravica : magistrsko delo [online]. Master’s thesis. Maribor : E. Turnšek. [Accessed 22 April 2025]. Retrieved from: https://dk.um.si/IzpisGradiva.php?lang=eng&id=89430
Copy citation
  
Average score:
0.5
1
1.5
2
2.5
3
3.5
4
4.5
5
(0 votes)
Your score:Voting is allowed only for logged in users.
Share:Bookmark and Share


Hover the mouse pointer over a document title to show the abstract or click on the title to get all document metadata.

Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:09.07.2024

Secondary language

Language:English
Title:Personal data protection as a fundamental human and patient`s right
Abstract:The Master’s thesis addresses the issues and dilemmas of personal data protection in healthcare and positions them in the legal system. From the »categories« or »types« of personal data, it mainly deals with sensitive health data. These data are called sensitive, because of their connection to the person’s or patient’s qualities on the basis of which they could be discriminated on or stigmatized (such examples are diagnosis of psychological illness, fertility problems, being HIV positive). Interestingly, Slovenia is the sixth country in Europe that included the right to personal data protection in its constitution. Nevertheless, data protection in Slovenian healthcare systems has been evolving ever since. Around 2000’s, Urgent Clinical Centre Ljubljana drafted the “Statement on transmission of Information on Personal Data and on Health Status”, which served as a basis for transmission of patients’ information. Short after, Slovenia started working on the eHealth Action Plan. Even though its implementation started in 2015, the project had flourished by the end of the Covid-19 crisis. It brought numerous changes, of which some turned out to be positive and others in a way less appreciated. The rise of the Covid-19 epidemic has also enhanced government's inclination to issue a number of regulations and decrees, which resulted in considerable public resistance, constitutional appeals, as well as actual violations of human and patient rights. This concludes the historical overview of the personal data protection framework in Slovenia and opens the door to the next big chapter, regarding the current legislation in connection to the right to data protection in our national legal order. Patient's right to data protection is not protected only at the national level, but also through provisions of primary and secondary EU law and ECHR. The Master's thesis addresses all relevant legal acts that in any way affect the implementation of the patient's right to the protection of (health) personal data. The foundations of the protection of the general right to personal data are laid down in the provisions of the highest acts, i.e. the Constitution, the EU primary law and the ECHR. In addition to the latter, this research also presents the more general legal acts that regulate the rules for the lawful exercise of that right, i.e. the General Data Protection Regulation and the Slovenian Personal Data Protection Act. As the work focuses on the analysis of data protection in healthcare systems and on specific health personal data, the research also stretches to specific legal acts in the healthcare field. Data protection law includes a number of related rights, for example the right to access, the right to restriction of processing, the right to be forgotten and among those the right for “the information to be provided”. The latter may associate with doctor’s duty to explain. Both phenomena, the mentioned right and the doctor’s duty, cover the patient's right to information, the only questions are to which information exactly, when and to what extent. In this regard, a comparison of the two is included in the Master's thesis to highlight their differences and expose some common points. Given that most of the Master's thesis focuses on the law applicable in Slovenia and partly in the EU, ending includes an interesting comparison of the concept of personal data protection in two very different legal systems - the U.S. and the EU. This somehow rounds off the Master's thesis and successfully presents a wholesome picture of the protection of personal data in the context of fundamental human rights and patients' rights.
Keywords:patients' personal data, sensitive personal data, medical data, right to privacy, development of the personal data protection, protection of human rights, medical documentation, the duty to inform patient, personal data protection, medical law, violations of right to personal data protection 


Comments

Leave comment

You must log in to leave a comment.

Comments (0)
0 - 0 / 0
 
There are no comments!

Back
Logos of partners University of Maribor University of Ljubljana University of Primorska University of Nova Gorica