| | SLO | ENG | Cookies and privacy

Bigger font | Smaller font
First page > Show document

Show document Help

Title:OTROK S FENILKETONURIJO
Authors:ID Fidler Lončarič, Maja (Author)
ID Pajnkihar, Majda (Mentor) More about this mentor... New window
ID Kegl, Barbara (Comentor)
Files:.pdf VS_Fidler_Loncaric_Maja_2014.pdf (771,93 KB)
MD5: 73D89C3716C5FFC9F40E40866B31FC7C
 
Language:Slovenian
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:FZV - Faculty of Health Sciences
Abstract:Teoretična izhodišča. V diplomskem delu je obravnavan otrok, ki ima fenilketonurijo. Fenilketonurija je redka presnovna bolezen pri otroku, zato je vloga družine ter medicinske sestre izredno pomembna. Metodologija raziskovanja. Raziskava je temeljila na kvalitativni metodologiji. Pregled in analiza domače ter tuje literature nam je omogočila opredelitev teoretičnih izhodišč. V empiričnem delu diplomskega dela smo uporabili deskriptivno metodo dela in metodo študije primera z opisno analizo. Uporabili smo intervju, ki je zajemal 52 vprašanj odprtega in zaprtega tipa z možnostjo kombiniranih odgovorov. Rezultati. S pomočjo študije primera smo ugotovili negovalne in zdravstveno-socialne probleme, s katerimi se srečuje družina. Izpostavili smo naslednje negovalne diagnoze: neučinkovito vzdrževanje zdravja, neučinkovito obvladovanje terapevtskih postopkov s strani družine pri poslabšanju fenilketonurije, možna pomanjkljiva skrb za zdravje (neustrezno prehranjevanje) in koncentracija, pomanjkljiva sposobnost koncentracije. Potrdimo lahko, da je najboljši način zdravljenja fenilketonurije redna dieta in ustrezna količina aminokislinskega preparata PKU glede na starost otroka. Sklep. Edini način, s katerim omogočimo otroku normalen in zdrav razvoj, je uvedba diete in uporaba priporočene vrednosti aminokislinskega preparata. Pomembno nalogo pri tem imajo starši, zdravniki, medicinske sestre ter dietetiki, ki naj otroku in družini nudijo stalno podporo in spodbudo.
Keywords:fenilketonurija, kakovostna obravnava, študija primera, teorija Dorothee E. Orem.
Place of publishing:Maribor
Publisher:[M. Fidler Lončarič]
Year of publishing:2014
PID:20.500.12556/DKUM-46293 New window
UDC:616-008.9(043.2)
COBISS.SI-ID:2061220 New window
NUK URN:URN:SI:UM:DK:VC8Y1SXF
Publication date in DKUM:11.12.2014
Views:1945
Downloads:423
Metadata:XML DC-XML DC-RDF
Categories:FZV
:
FIDLER LONČARIČ, Maja, 2014, OTROK S FENILKETONURIJO [online]. Bachelor’s thesis. Maribor : M. Fidler Lončarič. [Accessed 22 April 2025]. Retrieved from: https://dk.um.si/IzpisGradiva.php?lang=eng&id=46293
Copy citation
  
Average score:
0.5
1
1.5
2
2.5
3
3.5
4
4.5
5
(0 votes)
Your score:Voting is allowed only for logged in users.
Share:Bookmark and Share


Hover the mouse pointer over a document title to show the abstract or click on the title to get all document metadata.

Secondary language

Language:English
Title:PHENYLKETONURIA IN CHILDREN
Abstract:Theoretical background. This paper deals with a child who suffers from phenylketonuria. This is a rare metabolic disorder in children which makes the role of family and nurse even more important. Research methodology. The research has been based on qualitative methodology. The review of both domestic and foreign literature served as the basis for defining theoretical background. The empirical part of thesis comprises a case study and a descriptive analysis. A questionnaire with 52 open-ended and closed-ended questions was used giving the target audience the possibility of combined answers. Results. The case study enabled us to determine the difficulties and issues the family encounters in the healthcare and social field. In a child the emphasis was made on ineffective maintenance of health, inability of family to effectively manage therapeutic procedures when the disease aggravates, possible insufficient health care (inadequate diet) and concentration, poor ability to concentrate. We can confirm that the best way of treating phenylketonuria is a regular diet and sufficient intake of amino acid PKU supplement according to the child's age. Conclusion. The only way to enable a child a normal and healthy development is by introducing a diet and a recommended regime of amino acid supplement. An important role in this play both the parents and health-care workers including dieticians, who must offer the child and his family continuous support and encouragement.
Keywords:phenylketonuria, quality treatment, case study, Dorothee E. Orem’s theory.


Comments

Leave comment

You must log in to leave a comment.

Comments (0)
0 - 0 / 0
 
There are no comments!

Back
Logos of partners University of Maribor University of Ljubljana University of Primorska University of Nova Gorica