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Title:Kakovost življenja pacientov z amiotrofično lateralno sklerozo
Authors:ID Plemenitaš, Katja (Author)
ID Koželj, Anton (Mentor) More about this mentor... New window
ID Horvat Pinterič, Gordana (Comentor)
Files:.pdf VS_Plemenitas_Katja_2021.pdf (781,99 KB)
MD5: 54BEE468268D5C0139632B34CE1010B5
 
Language:Slovenian
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:FZV - Faculty of Health Sciences
Abstract:Napredovanje bolezni, izguba telesne neodvisnosti in strah pred smrtjo pacientov z amiotrofično lateralno sklerozo (v nadaljevanju ALS) kaže negativne vidike bolezni in s tem povezano kakovost življenja, zato je pomembno upoštevati vse dejavnike, ki pacientu pomagajo opredeliti kakovost življenja, in spoznati vse dejavnike, ki na kakovost življenja takšnega pacienta vplivajo. Uporabljena je kvalitativna metodologija raziskovanja. Uporabili smo metode opazovanja, poglobljenega intervjuja, analize vsebine in deskriptivno metodo. Določili smo kategorije in podkategorije. Kategorije se nanašajo na ključne elemente oziroma entitete ali atribute, ki smo jih zaznali kot skupne za vse tri intervjuje in se skladajo s postavljenimi raziskovalnimi vprašanji: socialna podpora, psihosocialni vidik in kakovost življenja. Ugotovili smo, da je socialna podpora pacientom z ALS zelo pomembna, predvsem pa dobri odnosi z družino in prijatelji, torej socialni stiki. Prilagajanje kronični bolezni, kot je ALS, zahteva nešteto strategij spoprijemanja s strani pacienta, kar je pokazala tudi naša raziskava. Prišli smo do spoznanj, da je nemoč eden od elementov psihosocialnega vidika, ki vpliva na kakovost življenja teh pacientov. Dejstva so pokazala, da se pri pacientih z ALS pojavijo spremembe tistih dejavnikov, za katere menijo, da so pomembni za vzdrževanje kakovosti življenja. To pomeni, da spremenijo svoja pričakovanja, da se bolj ujemajo z resničnostjo. Dojemanje kakovosti življenja pacientov z ALS je subjektivno in se razlikuje od posameznika do posameznika. Ugotovili smo, da je pri vseh treh intervjuvanih pacientih skupna nit upanje.
Keywords:amiotrofična lateralna skleroza, kakovost življenja, kvalitativna metoda, pacient, medicinska sestra
Place of publishing:Maribor
Publisher:[K. Plemenitaš]
Year of publishing:2021
PID:20.500.12556/DKUM-79374 New window
UDC:616.8-009.5-056.24(043.2)
COBISS.SI-ID:189087747 New window
Publication date in DKUM:22.03.2024
Views:340
Downloads:29
Metadata:XML DC-XML DC-RDF
Categories:FZV
:
PLEMENITAŠ, Katja, 2021, Kakovost življenja pacientov z amiotrofično lateralno sklerozo [online]. Bachelor’s thesis. Maribor : K. Plemenitaš. [Accessed 15 March 2025]. Retrieved from: https://dk.um.si/IzpisGradiva.php?lang=eng&id=79374
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Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:19.06.2021

Secondary language

Language:English
Title:Quality of life in patients with amyotrophic lateral sclerosis
Abstract:Disease progression, loss of physical independence and fear of death in patients with amyotrophic lateral sclerosis (ALS) show negative aspects of the disease and related quality of life, so it is important to consider all factors that help the patient to define quality of life and to know all factors that affect the quality of life affect. A qualitative research methodology was used. We used methods of observation, in-depth interview, content analysis and descriptive method. We defined categories and subcategories. The categories refer to the key elements or entities or attributes, that we perceived, as common to all three interviews and are consistent with the research questions posed: social support, psychosocial aspect and quality of life. We found that social support for patients with ALS is very important, and above all good relations with family and friends, is social contacts. Adapting to a chronic disease such as ALS requires a myriad of coping strategies on the part of the patient, as our research has also shown. We found that impotence is one of the elements of the psychosocial aspect that affects the quality of life of these patients. We found that patients with ALS experience changes in those factors that they believe are important for maintaining quality of life. That is, they change their expectations to better match reality. Perception of the quality of life of patients with ALS is subjective and varies from one to another. We found that in all three interviewed patients, the common red thread was hope.
Keywords:amyotrophic lateral sclerosis, quality of life, qualitative method, patient, nurse


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