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Title:Quality of life for families of children with intellectual disabilities
Authors:ID Schmidt, Majda (Author)
ID Seršen, Ksenija (Author)
Files:.pdf Revija_za_elementarno_izobrazevanje_2017_Schmidt_Krajnc,_Sersen_Quality_of_Life_for_Families_of_Children_with_Intellectual_Disabilities.pdf (109,64 KB)
MD5: 475B9DAC334C200E836543821C3968AE
PID: 20.500.12556/dkum/64e1b6eb-5f48-4391-997e-dcf5248e5359
 
URL http://rei.pef.um.si/images/Izdaje_revije/2017/1/REI_10_1_cl_1.pdf
 
Language:English
Work type:Article
Typology:1.01 - Original Scientific Article
Organization:PEF - Faculty of Education
Abstract:The main part of the article presents the results of a recent empirical study about the quality of life for families in Slovenia that have a child with intellectual disabilities and other developmental disabilities. Using the FQOLS-2006, we analysed nine quality of life domains (Health, Financial Well-Being, Family Relationships, Support from Others, Support Services, Influence of Values, Careers, Leisure and Community Interaction) from the perspective of six measurement dimensions. The study also examines the differences among the measurement dimensions in the nine domains. The sample consisted of 44 families. We used descriptive statistics and inferential statistics (Friedman test). The Family Relationships domain had the highest average rating of all measured domains regarding the quality of family life. The results in the domain of Support from Others are not encouraging, in particular the domain of Support from Services. Families require powerful support programs from qualified professional teams as well as societal and political attention.
Keywords:family quality of life, intellectual disabilities, quality of life domains, quality of life dimensions
Publication status:Published
Publication version:Version of Record
Year of publishing:2017
Number of pages:str. 5-17
Numbering:Letn. 10, št. 1
PID:20.500.12556/DKUM-68545 New window
ISSN:1855-4431
UDC:159.922.76-056.313
ISSN on article:1855-4431
COBISS.SI-ID:23022344 New window
NUK URN:URN:SI:UM:DK:0BEGZ9TZ
Publication date in DKUM:26.09.2017
Views:1792
Downloads:141
Metadata:XML DC-XML DC-RDF
Categories:Misc.
:
SCHMIDT, Majda and SERŠEN, Ksenija, 2017, Quality of life for families of children with intellectual disabilities. Revija za elementarno izobraževanje [online]. 2017. Vol. 10, no. 1, p. 5–17. [Accessed 3 April 2025]. Retrieved from: https://dk.um.si/IzpisGradiva.php?lang=eng&id=68545
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Record is a part of a journal

Title:Revija za elementarno izobraževanje
Publisher:Založba PEF, Pedagoška fakulteta, Založba PEF, Pedagoška fakulteta, Založba PEF, Pedagoška fakultete Univerze, Univerza na Primorskem, Pedagoška fakulteta, Univerzitetna založba Univerze v Mariboru
ISSN:1855-4431
COBISS.SI-ID:239555072 New window

Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:26.09.2017

Secondary language

Language:Slovenian
Title:Družine z otroki z motnjami v duševnem razvoju in kakovost življenja
Abstract:V osrednjem delu prispevka predstavljamo najnovejše rezultate raziskave o kakovosti življenja slovenskih družin z otroki z motnjami v duševnem razvoju in drugimi razvojnimi motnjami. Podatke smo zbrali s pomočjo mednarodnega vprašalnika FQOLS - 2006. Z vidika šestih dimenzij smo analizirali devet področij kakovosti družinskega življenja (zdravje; finančno stanje; družinski odnosi; podpora drugih oseb; podpora služb; vpliv vrednot; poklic in priprava za poklic; prosti čas in rekreacija; interakcija s skupnostjo). Preučevali smo tudi razlike znotraj dimenzij na področjih kakovosti življenja. Vzorec je zajemal 44 družin. V raziskavi smo uporabili deskriptivno in inferenčno statistiko (Friedmanov test). Med področji kakovosti življenja so starši z najvišjimi povprečji z vidika šestih dimenzij ocenili področje družinski odnosi. Skrb vzbujajo rezultati na področju podpora drugih oseb, še zlasti pa na področju podpora služb. Družine potrebujejo pomoč usposobljenih strokovnih timov in vključenost v intenzivne podporne programe ter tudi ustrezno družbeno in politično pozornost.
Keywords:kakovost življenja, motnje v duševnem razvoju, področja kakovosti življenja, dimenzije kakovosti življenja


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  1. Revija za elementarno izobraževanje

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