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Opis: Background: In the daily life of individuals living with Parkinson's disease, their loved ones are crucial. Adapting family members to the patient's condition, support in providing care, and psychosocial adaptations is essential. Aim: To explore family members' perception of everyday caregiving for a family member living with Parkinson's disease and to describe their role in the care and everyday life. Methods: In a descriptive, qualitative thematic analysis study, semi-structured interviews were conducted with ten people between the ages of 20 and 70, the closest family members of people living with Parkinson's disease. The analysis of the collected data was carried out using thematic analysis. Results: We generated the main theme: "Living with a family member with Parkinson's disease", with associated secondary-level sub-themes: "Response", "Change", "Care", and "Support". Family members of individuals living with Parkinson's disease frequently encounter similar life situations. The most notable transformation in their daily lives primarily revolves around adapting to various activities. Conclusions: Family members are the ones who most often take on the role of caregiver and provide help to their loved ones. Many of them accept the disease as a part of everyday life and learn to live with it. It is of fundamental importance that we offer family members the necessary support, knowledge, and involvement in holistic treatment and care.
Ključne besede: Caregivers, Parkinson’s Disease, Family, Patients, Experiences, Patient care
Objavljeno v DKUM: 15.09.2025; Ogledov: 0; Prenosov: 12
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Opis: Introduction: Healthcare workers (HCWs) are often exposed to mistreatment by patients, which has negative effects on both staff and institutions. To take appropriate action to help HCWs in this context, patient-related social stressors (PSS) should be explored. The purpose of the research was to identify the most pronounced patient behaviour contributing to the social stress (SS) of HCWs, and compare PSS between different HCWs and different types of healthcare institutions. Methods: 750 HCWs from Slovenian public health centres and hospitals participated in the online survey. Although the non-probability sampling was used, the sample was representative according to gender and HCW type (doctors, nurses and other HCWs). Results: The results show that the most pronounced patient behaviour contributing to the SS of HCWs are attitudes and behaviour of patients that are challenging in terms of what is - from the HCWs' point of view - considered as acceptable and reasonable (disproportionate patient expectations), and unpleasant, humourless, and hostile patients. HCWs in primary institutions meet less verbally aggressive and unpleasant patients than in tertiary ones. Although among all HCWs less educated ones are more exposed to inappropriate behaviour, doctors are those HCWs who experience more inappropriate behaviour. Conclusion: Managers should enable HCWs to get comprehensive patient service training, oriented towards improving relationship management and patient-HCW relationships.
Ključne besede: healthcare workers, mistreatment, patients, social stressors
Objavljeno v DKUM: 04.09.2024; Ogledov: 59; Prenosov: 6
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Opis: Objective While other models focus more on disease and pathophysiology, the biopsychosocial approach emphasises the importance of human health and disease in their fullest contexts. If we are to gain an insight into physical and psychological health needs, and address them quickly and adequately, it is important that we recognise them already at the family practice stage. An approach that assesses needs at patient level could also be seen as patient-centred care, which is one of the key elements of high-quality care. To the best of our knowledge, no scale for measuring the biopsychosocial approach of family physicians has yet been developed. Design The aim of this study was to develop and validate a scale that measures the biopsychosocial approach of family physicians to their patients through the Delphi and validation process. Setting The scale was developed through the Delphi study and validated by means of significant statistical methods. Pearson’s correlation coefficient, Cronbach’s alpha, the intracorrelation coefficient, the Spearman-Brown coefficient and exploratory factor analysis were applied. Participants Five family physicians took part in a brainstorming process and 24 family medicine experts took part in the Delphi study. For the first part of the validation process, there were 31 family medicine trainees in the first group and 32 in the second group. For the last part of the validation process, 164 family physicians completed the scale. Result Through the Delphi study, 39 final items covering three areas within the biopsychosocial approach were identified. Construct validity was high, with positive linear correlation and good face validity. The intraclass correlation coefficient for test–retest reliability was 0.862. The Spearman-Brown coefficient was the highest (0.931) on an even and odd division. Factor rotation showed that three factors on 35 items explained 39.5% of variances. The final internal consistency on 35 items was 0.911. Conclusion The developed scale measures the biopsychosocial dimension of family physicians’ work with high Cronbach’s alpha measures and good validity.
Ključne besede: scale for measuring biopsychosocial approach, family physicians, patients, development, validation
Objavljeno v DKUM: 26.06.2024; Ogledov: 147; Prenosov: 20
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Opis: Healthcare systems around the world are currently witnessing various challenges, including population aging and workforce shortages. As a result, the existing, overworked staff are struggling to meet the ever-increasing demands and provide the desired quality of care. One of the promising technological solutions that could complement the human workforce and alleviate some of their workload, are socially assistive humanoid robots. However, despite their potential, the implementation of socially assistive humanoid robots is often challenging due to low acceptance among key stakeholders, namely, patients and healthcare professionals. Hence, the present study first investigated the extent to which these stakeholders accept the use of socially assistive humanoid robots in nursing and care routine, and second, explored the characteristics that contribute to higher/lower acceptance within these groups, with a particular emphasis on demographic variables, technology expectations, ethical acceptability, and negative attitudes. In study 1, conducted on a sample of 490 healthcare professionals, the results of structural equation modeling showed that acceptance is driven primarily by aspects of ethical acceptability, although education and technology expectations also exert an indirect effect. In study 2, conducted on a sample of 371 patients, expectations regarding capabilities and attitudes towards the social influence of robots emerged as important predictors of acceptance. Moreover, although acceptance rates differed between tasks, both studies show a relatively high acceptance of socially assistive humanoid robots. Despite certain limitations, the study findings provide essential knowledge that enhances our understanding of stakeholders’ perceptions and acceptance of socially assistive humanoid robots in hospital environments, and may guide their deployment.
Ključne besede: socially assistive humanoid robots, attitudes, expectations, patients, healthcare professionals
Objavljeno v DKUM: 12.06.2024; Ogledov: 166; Prenosov: 17
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Opis: Critical illness may disrupt nutritional, protective, immune, and endocrine functions of the gastrointestinal tract, leading to a state of gastrointestinal dysmotility. We aimed to identify factors associated with the occurrence of gastrointestinal dysmotility in critically ill patients. A cross-sectional retrospective study was conducted, using patient files as a source of data. The study included 185 critically ill patients treated in the intensive care unit of the University Clinical Center, Kragujevac, Serbia, from January 1, 2016, to January 1, 2022. Significant risk factors associated with some form of gastrointestinal dysmotility were acute kidney injury (with paralytic ileus, nausea, vomiting, and constipation), recent abdominal surgery (with ileus, nausea, vomiting, and constipation), mechanical ventilation (with ileus, and nausea), age (with ileus and constipation), and use of certain medication such as opioids (with ileus, gastro-esophageal reflux, nausea, vomiting, and constipation), antidepressants (with ileus, nausea, and vomiting), and antidiabetics (with ileus). On the other hand, Charlson comorbidity index had divergent effects, depending on the form of gastrointestinal dysmotility: it increased the risk of gastro-esophageal reflux but protected against ileus, nausea, and vomiting. In clonclusion, recognition of factors associated with gastrointestinal dysmotility should initiate preventative measures and, thus, accelerate the recovery of critically ill.
Ključne besede: gastrointestinal dysmotility, critically ill patients, risk factors, intensive care unit
Objavljeno v DKUM: 04.04.2024; Ogledov: 188; Prenosov: 16
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