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1.
Patients' genetic data protection in Polish law and EU law : selected issues
Kinga Michałowska, Karol Magoń, 2018, izvirni znanstveni članek

Opis: The article entitled "Patients' genetic data protection in Polish law and EU law - selected issues" presents issues related to the protection of patients' rights and focuses on the legal basis for genetic testing and genetic data protection. Based on a comparison of regulations of international law and regulations on genetic tests introduced in foreign legal systems, the text analyzes the assumptions for the draft of the Polish act on genetic tests performed for health purposes. It presents the patient's consent to testing, the scope of information provided to the patient, the right to disclose research results to related persons and the protection of genetic data. In reference to the regulations set out in other acts, it was noted that they do not guarantee the protection of information obtained as a result of research. Due to the particular nature of genetic data, they require increased protection, which can be guaranteed through implementation of the Act on Genetic Research. In the final part, authors presented the most important achievements of the judicature of European Court of Human Rights in the field of genetic data protection.
Ključne besede: genetic research, genetic data, protection of genetic data, patient's rights, medical documentation
Objavljeno v DKUM: 09.10.2018; Ogledov: 1436; Prenosov: 78
.pdf Celotno besedilo (581,68 KB)
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2.
E-documentation and crossborder healthcare
Marta Sjeničić, 2015, izvirni znanstveni članek

Opis: E-health is, in many European countries, one of the health care areas that are in the fastest development, due to the endeavor to apply modern information and communication technologies for the purpose of meeting the needs of citizens, patients, health professionals and the health policy creators. E-health potentials are virtually endless and can reach from the delivery of health information and health control over the internet, through on- line consultations, issuing of drugs through electronic devices, till robotised surgeries or care of elderly population. European Union works actively in this field through different conventions and directives related to the patients’ rights in cross-border healthcare, but also protection of individuals with regard to the processing of personal data. One of the most recent and important documents in this field was Working Document 01/2012 on epSOS (Article 29 Data Protection Working Party), which was enacted January, 2012, and which was the basis for so-called epSOS project that has been implemented from July 1, 2008 till June 31, 2014. The main objective of epSOS project is to shape, establish and evaluate the infrastructure of services which would enable the crossborder operability between the system of electronic health documentation in Europe. epSOS project aims to develop practical frame for e-health and information-communication infrastructure that would be basis for the safe access to the information on patients' health, in the different European health systems.
Ključne besede: electronic health documentation, electronic medical record, electronic health record, epSOS, national contact point
Objavljeno v DKUM: 08.10.2018; Ogledov: 1084; Prenosov: 223
.pdf Celotno besedilo (337,79 KB)
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