1. Health related QoL in celiac disease patients in SloveniaEva Turk, Dušanka Mičetić-Turk, Maja Šikić Pogačar, Alojz Tapajner, Veljko Vlaisavljević, Valentina Prevolnik Rupel, 2020, izvirni znanstveni članek Opis: Background: Measurements of health-related quality of life (HRQoL) among celiac disease patients using a validated questionnaire have been lacking in Slovenia. This study aims to measure HRQoL in celiac disease (CD) patients using EQ-5D internationally validated questionnaire and comparing it to the HRQoL of the general population.
Methods: In this cross sectional analysis all of the approximately 2000 members of the Slovenian Celiac Society were invited to take part. We used a 3 step approach for recruitment and data collection. HRQoL was evaluated through the EuroQoL EQ-5D-5L instrument (Slovenian version) and analysed using the ordinal logistic regression.
Results: Out of 321 patients who gave their consent, 247 celiac patients were included in the study (77%). 68% of the participants were female and 53% of them lived in an urban setting. Most patients originated from North-East Slovenia, whereas approximately 30% of patients came from other Slovenian regions. The EQ-5D respondents’ self-reported health status at the time of the study show that most patients have slight or no problems when living with CD. The duration of the gluten-free diet, academic education and rare (< 1 × year) doctor visits affect EQ-5D in a positive way. On the other hand, higher age and chronic rheumatic disease were negatively associated with EQ-5D also when compared to the general population.
Conclusion: This is the first Slovenian study to measure the HRQoL of Slovenian CD patients, using an internationally validated questionnaire. The results of our study show that HRQoL is slightly impaired among Slovenian patients with CD. Clinical characteristics are better determinants of their HRQoL than socio-demographic factors. Greater awareness of the impact of CD on patients’ HRQoL would improve the holistic management of CD patients.
Ključne besede: health, quality of life, HRQoL, celiac disease, EQ‑5D, valuation, measurement, Slovenia
Objavljeno v DKUM: 06.01.2025; Ogledov: 0; Prenosov: 7
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2. Quality of life and health status in middle-aged presumed healthy Slovenian family practice attendeesMatic Tement, Polona Selič-Zupančič, 2021, izvirni znanstveni članek Opis: Background: There is a gap in our knowledge of health-related quality of life (HRQoL) in a population presumed healthy, so this study aimed to assess the associations between HRQoL, demographics and clinical variables.
Methods: The participants were attendees, presumed healthy, at 40 pre-selected model family medicine practices (MFMPs), aged between 30 and 65 years and recruited during a preventive check-up in 2019. Each MFMP pragmatically invited 30 attendees to voluntarily participate. The EQ-5D questionnaire was administered as a measure of HRQoL; the independent variables were demographic characteristics, smoking, alcohol consumption, stress perception, physical activity, signs of depression, cardiovascular risk, body mass index, blood pressure values, and blood sugar and lipidogram laboratory test values. Ordinal logistic regression was used to calculate associations between self-assessed quality of life, demographics, and clinical variables, with P<0.05 set as statistically significant.
Results: Of 986 participants, 640 (64.9%) were women and 346 (35.1%) men, aged 42.7+-8.6 years. The average values for the EQ-5D-3L were 0.9+1-0.15. In the multivariate model, a positive association between adequate physical activity (p=0.003), and a negative association between higher age (p<0.001), female gender (p=0.009), signs of depression (p<0.001), stress (p=0.013), and EQ-5D score were identified.
Conclusion: Given that physical activity was shown to be positively associated with HRQoL, it is of the utmost importance for family physicians to motivate their middle-aged patients, especially women and those with signs of depression and excessive stress, to adopt a more rigorously physically active lifestyle.
Ključne besede: health related quality of life, health status, family practice, middle-age, physical activity, depression, stress, coping
Objavljeno v DKUM: 11.12.2024; Ogledov: 0; Prenosov: 8
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3. Nursing support in facilitating mental well-being of adolescentsLeona Cilar Budler, 2022, doktorska disertacija Opis: Background: Mental well-being is a state in which an individual acts positively, feels good, copes with the daily stressors and contributes to his/her community. Adolescents are a population who experience the various stressors brought on by growing up. The purpose of the doctoral dissertation is to determine the mental well-being of adolescents in correlation with the support of family, friends, teachers, and nurses.
Methods: The research was based on the paradigm of pragmatism which supports the usage of quantitative and qualitative approaches using mixed methods. The quantitative part of the research included 2 972 adolescents. The survey method was used, descriptive and inferential statistics and presentation of the results were done with the help of tables, charts and figures. In the qualitative part of the research, data were collected using the interview method. Interviews were conducted with 5 focus groups involving 16 adolescents, 8 parents, 6 teachers, 3 legislators, and 6 nurses. The data were analysed following the steps of Corbin & Strauss (2008).
Results: The mental well-being of adolescents is positively related (r = 0.624) to their social support. The mental well-being (r = -0.286) and social support (r = -0.239) of adolescents declines with age. Adolescents are of the opinion that the role of the nurse is to talk to them, help them, advise them, and explain difficulties that bother them. The mental well-being of adolescents is related to their interaction and interpersonal relations with parents, friends, and teachers. In ensuring the mental well-being of adolescents, we must consider the model multidimensional well-being. The Model of Interpersonal Relationships is proposed, which is formed based on the results of quantitative and qualitative part of the research and taking into account the concepts of the Theory of Interpersonal Relationships (Peplau, 1952) and the model of Multidimensional Well-being (Sarriera & Bedin, 2017).
Discussion: Mental well-being is an important and relatively new concept in nursing. Adolescents’ mental well-being is closely linked to interpersonal relationships and a safe environment in which they can express themselves. Adolescents and parents do not obtain the necessary professional help in a timely manner. There is also a need for additional education on the mental well-being of adolescents among adolescents, parents, teachers, and nurses.
Conclusion: Interpersonal relationships between adolescents, family, friends, teachers, and nurses are of major importance for ensuring mental well-being. There is a need for further research to improve the mental well-being of adolescents worldwide.
Ključne besede: youth, mental health, quality of life, social support, nursing
Objavljeno v DKUM: 12.09.2022; Ogledov: 895; Prenosov: 302
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4. Health-related quality of life in paediatric arterial hypertension : a cross-sectional studyTadej Petek, Tjaša Hertiš, Nataša Marčun-Varda, 2018, izvirni znanstveni članek Opis: Background: The prevalence of paediatric hypertension is increasing worldwide, especially due to the childhood obesity epidemic, and is an important public-health concern. While the Health-Related Quality of Life (HRQoL) was already shown to be impaired in the adult hypertensive population, a scarcity of data still exists on HRQoL in paediatric hypertensive patients. Our purpose was thus to assess the HRQoL of children and adolescents with arterial hypertension, using self- and proxy-reports, and to determine the correlations between child and parent questionnaire scores.
Methods: The Paediatric Quality of Life Inventory™ 4.0 Generic Core Scales were administered via post to children and adolescents, aged 5-18 years, with primary or secondary arterial hypertension and parents as proxy-reports. Patients were recruited from a paediatric nephrology unit in a tertiary hospital, using an out-patient clinic visit registry. Healthy school children and adolescents from a local primary school, aged 6 to 15 years, and their parents formed the control group. HRQoL group comparisons were calculated with independent samples t-test and child-parent correlations with the Pearson’s r correlation coefficient.
Results: In total we recruited 139 patient and 199 control group participants as self- and proxy-reports. Scores from self- as well as proxy-reports indicated a significantly lower overall HRQoL in the paediatric hypertensive population (95% CI for mean score difference: − 11.02, − 2.86 for self- and − 10.28, − 2.67 for proxy-reports; p = .001). In self-reports, lower physical (95% CI: -13.95, − 4.89; p = <.001), emotional (95% CI: -12.96, − 2.38; p = .005), school (95% CI: -11.30, − 0.42; p = .035), and psychosocial functioning scores were observed (95% CI: -10.34, − 1.89; p = .005). Parent proxy-reports were lower in physical (95% CI: -14.31, − 5.39; p = <.001), emotional (95% CI: -12.39, − 2.60; p = .003) and psychosocial scores (95% CI: -9.36, − 1.34; p = .009). Pearson’s r values ranged between 0.62 to 0.79 in patient and 0.56 to 0.80 in control sample (p < .001). Interestingly, hypertensive children reported lower social functioning scores than hypertensive adolescents (p < .001).
Conclusions: This cross-sectional study gives insight into the detrimental impact of hypertension on children’s and adolescents HRQoL, which may inform public health experts. Furthermore, it shows that clinicians should aim to improve patients’ physical and psychosocial well-being throughout their development.
Ključne besede: arterial hypertension, paediatric, health-related quality of life, PedsQL
Objavljeno v DKUM: 26.10.2018; Ogledov: 1783; Prenosov: 216
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5. Comorbidities and characteristics of coronary heart disease patients: their impact on health-related quality of lifeKsenija Tušek-Bunc, Davorina Petek, 2016, izvirni znanstveni članek Opis: Background: Patients with coronary heart disease (CHD) commonly present with more than one comorbid condition, contributing to poorer health-related quality of life (HRQoL). The aim of our study was to identify the associations between HRQoL and patient characteristics, vascular comorbidities and anxiety/depression disorders.
Methods: This observational study was conducted in 36 family medicine practices selected by random stratified sampling from all regions of Slovenia. HRQoL was assessed using the European Quality of Life - 5 Dimensions (EQ-5D) questionnaire and EQ Visual Analogue Scale (EQ-VAS). The associations between HRQoL and patient characteristics stratified by demographics, vascular comorbidities, health services used, their assessment of chronic illness care, and anxiety/depression disorders were identified by ordinal logistic regression and linear regression models.
Results: The final sample included 423 CHD patients with a mean age of 68.0 ± SD 10.8 years; 35.2% were female. Mean EQ-VAS score was 58.6 ± SD 19.9 (median: 60 with interquartile range of 45–75), and mean EQ-5D index was 0.60 ± SD 0.19 (median: 0.56 with interquartile range of 0.41–0.76). The statistically significant predictors of a lower EQ-VAS score were higher family physician visit frequency, heart failure (HF) and anxiety/depression disorders (R² 0.240; F = 17.368; p < 0.001). The statistically significant predictor of better HRQoL, according to EQ-5D was higher patient education, whereas higher family physician visit frequency, HF and peripheral artery disease (PAD) were predictors of poorer HRQoL (Nagelkerke R 2 = 0.298; χ 2 = 148.151; p < 0.001).
Conclusions: Results of our study reveal that comorbid conditions (HF and PAD), family physician visit frequency and years in education are significant predictors of HRQoL in Slovenian CHD patients.
Ključne besede: coronary heart disease patient, health-related quality of life, vascular comorbidities, anxiety/depression disorders
Objavljeno v DKUM: 29.06.2017; Ogledov: 1747; Prenosov: 431
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