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1.
Quality of life for families of children with intellectual disabilities
Majda Schmidt, Ksenija Seršen, 2017, izvirni znanstveni članek

Opis: The main part of the article presents the results of a recent empirical study about the quality of life for families in Slovenia that have a child with intellectual disabilities and other developmental disabilities. Using the FQOLS-2006, we analysed nine quality of life domains (Health, Financial Well-Being, Family Relationships, Support from Others, Support Services, Influence of Values, Careers, Leisure and Community Interaction) from the perspective of six measurement dimensions. The study also examines the differences among the measurement dimensions in the nine domains. The sample consisted of 44 families. We used descriptive statistics and inferential statistics (Friedman test). The Family Relationships domain had the highest average rating of all measured domains regarding the quality of family life. The results in the domain of Support from Others are not encouraging, in particular the domain of Support from Services. Families require powerful support programs from qualified professional teams as well as societal and political attention.
Ključne besede: family quality of life, intellectual disabilities, quality of life domains, quality of life dimensions
Objavljeno: 26.09.2017; Ogledov: 557; Prenosov: 86
.pdf Celotno besedilo (109,64 KB)
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2.
The effect of an educational intervention in family phisicians on self-rated quality of life in patients with medically unexplained symptoms
Vojislav Ivetić, Klemen Pašić, Polona Selič, 2017, izvirni znanstveni članek

Opis: Introduction: Medically unexplained symptoms (MUS) are very common in family medicine, despite being a poorly-defined clinical entity. This study aimed to evaluate the effect of an educational intervention (EI) on self-rated quality of life, treatment satisfaction, and the family physician-patient relationship in patients with MUS. Methods: In a multi-centre longitudinal intervention study, which was performed between 2012 and 2014, patients were asked to rate their quality of life, assess their depression, anxiety, stress and somatisation, complete the Hypochondriasis Index, the Medical Interview Satisfaction Scale and the Patient Enablement Instrument for assessing the physician-patient relationship, before and after the EI. Results: The mean values before and after the intervention showed that after the EI, patients with MUS gave a lower (total) mean rating of their health issues and a higher rating of their quality of life, and they also had a more positive opinion of their relationship with the physician (p<0.05). However, there were no differences in the (total) rating of treatment satisfaction before and after the EI (p=0.423). Significant differences in the symptoms in patients with MUS before and after the intervention were confirmed for stress, somatisation and hypochondriasis (p<0.05). Conclusions: It could be beneficial to equip family physicians with the knowledge, skills and tools to reduce hypochondriasis and somatisation in MUS patients, which would improve patients’ self-rated health status.
Ključne besede: medically unexplained symptoms, family medicine, educational intervention, quality of life, treatment satisfaction, family physician-patient relationship
Objavljeno: 06.04.2017; Ogledov: 985; Prenosov: 320
.pdf Celotno besedilo (955,23 KB)
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