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2. Quality of life and patient satisfaction with family practice care in a roma population with chronic conditions in northeast SloveniaErika Zelko, Igor Švab, Danica Rotar-Pavlič, 2015, izvirni znanstveni članek Opis: Objectives: Health-related quality of life (HRQoL) measures a patient's subjective experience of his or her health status. We aimed to show how the presence of chronic diseases and satisfaction with family physicians (FPs) were associated with the HRQoL of a Roma population.
Methods: A cross-sectional study was carried out in May 2011 on a representative sample of 650 Roma living in Prekmurje, Slovenia. The EQ-5D questionnaire was used for measuring the HRQoL of the Roma. Demographical data, 12 groups of diseases diagnosed in the last 12 months and satisfaction with FPs were included in the questionnaire.
Results: The response rate was 88.3% (574), of which 56.4% were female, and the average age of the participants had a mean value of 40.2+-12.7 years. The presence of cardiovascular problems with risk factors for them or presence of musculoskeletal disorders were strongly associated with the presence of pain (Cramer's V = 0.40 and 0.46 respectively). There was a strong association between the presence of mental disorders and anxiety and depression (Cramer's V = 0.58). The average satisfaction with the family physician was 3.9 (mean+-1.10) on a five-point Likert scale. There was no significant association between HRQoL and satisfaction with the family physician.
Conclusions: Roma with chronic mental health problems had the lowest HRQoL in the Roma population. More attention should be paid to this subgroup of Roma in family medicine, and interventions should be provided. High satisfaction with their FPs is not associated with the observed quality of life variables. Ključne besede: quality of life, Roma, patient satisfaction Objavljeno v DKUM: 05.04.2017; Ogledov: 1422; Prenosov: 187
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3. Health beliefs and practices among Slovenian Roma and their response to febrile illnesses : a qualitative studyDanica Rotar-Pavlič, Erika Zelko, Janko Kersnik, Verica Lolič, 2011, izvirni znanstveni članek Opis: Introduction: When the Roma fell ill in the past, they used herbal home remedies to treat diseases. If the remedy failed to cure the illness, they called the local healer. Today, most Roma visit physicians. This study investigates health beliefs and practices held by the Roma people in Slovenia and their response to febrile illnesses.
Methods: Field interviews using a semi-structured questionnaire were conducted in the vicinity of Kočevje. Sociodemographic data were gathered and recorded manually, and the interviews were tape recorded. Qualitative analysis was performed by three researchers. Special attention was paid to data validation.
Results: The majority of Roma are not acquainted with thermometers and therefore do not use them. About onethird of the interviewees knew what the normal body temperature should be. Only 15% of the Roma population take their body temperature when they are feeling unwell. One-half visit their physicians. More than half of the population take paracetamol or aspirin when they feel feverish. More often, they resort to tea and emphasize the healing effect of sweating.
Conclusion: The Roma beliefs and practices regarding health and fever are instructive and show how impoverished a narrow biomedical approach can be. Failure to use technical devices, such as thermometers, and lack of familiarity with the numerical values defining the border between normal and elevated body temperature, nonetheless do not mean that the Roma take inappropriate measuresin response to illness. Illnesses (including fever) can also be recognized without these tools and can be appropriately responded to by drinking teas, using compresses, and taking fever-reducing medications. Ključne besede: Roma, illness, thermometer, fever, activity, doctor Objavljeno v DKUM: 05.04.2017; Ogledov: 1328; Prenosov: 209
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4. DISKRIMINACIJA ROMOV V EU PO ODLOČBI SODIŠČA EU V ZADEVI NIKOLOVAKristina Kušar, 2015, diplomsko delo Opis: Evropska unija se je začela intenzivneje posvečati Romom ob koncu devetdesetih let, zaradi širitve na vzhodno in srednjo Evropo. Eden večjih dosežkov EU v boju proti diskriminaciji je bila Direktiva o rasni enakosti iz leta 2000. EU je namenila tudi veliko denarja romskim projektom. Kljub vsemu pa se Romi še vedno srečujejo z diskriminacijo in ekonomskimi problemi.
Anelia Georgieva Nikolova ima v bolgarskem mestu Dupnica, natančneje v mestni četrti Gizdova Mahala, trgovino z živili. V tej mestni četrti je večina romskega prebivalstva. Zaradi pogostih manipulacij električnih števcev, se je bolgarsko elektrodistribucijsko podjetje (v nadaljevanju ČEZ RB) samo v tej četrti poslužilo sporne prakse, saj je števce namestilo na višino sedmih metrov, tako da je onemogočeno preverjanje porabe. A.G.Nikolova se je zaradi tega ukrepa pritožila pri Komisiji za zaščito pred diskriminacijo (v nadaljevanju KDZ). KDZ je ugotovilo diskriminacijo, nato pa je podjetje ČEZ RB podalo tožbo na Upravnem sodišču v Sofiji. To sodišče je kasneje postavilo deset predhodnih vprašanj sodišču EU. V sodbi je sodišče poudarilo, da se načelo enakega obravnavanja ne uporablja samo za osebe neke narodnosti, ampak tudi za ostale osebe, ki se zaradi diskriminatornega ukrepa obravnavajo manj ugodno. Poudarilo je tudi da to, da v mestni četrti živijo prebivalci, ki niso Romi ne izključuje tega, da je sporna praksa nastala zaradi večine romskega prebivalstva. Sporna praksa je sicer primerna za doseganje cilja, a je Sodišče poudarilo, da je nesorazmerna glede na interese prebivalcev mestne četrti. Ključne besede: Zadeva Nikolova, Evropska unija, Direktiva o rasni enakosti, Bolgarija, Romi, diskriminacija, preizkus sorazmernosti. One of the biggest achievments of the EU in fight against discrimination was the Racial equality directive from year 2000. EU has financed many projects for Roma people. Objavljeno v DKUM: 22.04.2016; Ogledov: 3538; Prenosov: 172
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